Valencia, February 2, 2026 – “The Art of Emotions,” a project that unites art, health, and personal testimonies to raise awareness of myasthenia gravis and the realities of those living with this rare disease, was inaugurated this morning at ‘The Terminal Hub’. The project uses artificial intelligence and design to transform the testimonies of people with myasthenia gravis into works of art that reflect how each individual has chosen to bring the disease to light. These works have been exhibited at the space, and travelling exhibitions will be held throughout the country. The event, held at 11:00 a.m., brought together institutional representatives, healthcare professionals, patients, associations, and collaborating organizations in a gathering marked by emotion, reflection, and social commitment.

The day began with a welcome and opening address by Javier Copoví, Director General of Disability for the Valencia City Council. In a warm and personal speech, he introduced the purpose of the event and expressed his gratitude for the involvement of all the individuals and organizations that made the project possible. This institutional opening highlighted the importance of public support for rare diseases and the need to back initiatives originating from associations to promote visibility and raise public awareness.

One of the key moments of the event was the speech by Raquel Pardo Gómez, President of the Spanish Myasthenia Association (AMES), who presented the project and highlighted the organization’s work in defending the rights and quality of life of people with myasthenia gravis. During the presentation, three testimonial videos and a summary video were shown, offering firsthand insight into the experiences, challenges, and emotions of those who participated in the initiative. These videos highlighted their active role and their ability to transform the experience of the disease into a message of strength and hope.

“Raising awareness of our disease is fundamental for us, because what isn’t communicated seems not to exist. Dissemination is crucial, not only for those who suffer from this disease and their families, but also for healthcare professionals and for people who are experiencing the disease for the first time but are unaware of it, in order to contribute, through information, to its early detection,” Pardo explained as the central objective of these sessions.

The programme continued with a roundtable discussion in which patients participating in the project shared their stories, moderated by the master of ceremonies. In a friendly and engaging format, they shared how participating in “The Art of Emotions” provided a space for expression, recognition, and community building, fostering an atmosphere of empathy and understanding among the audience.

The clinical perspective was provided by Dr. Teresa Sevilla Mantecón, from the Neurology Department of the La Fe University and Polytechnic Hospital, who offered a clear and accessible explanation of Myasthenia Gravis, its clinical management, and the importance of early diagnosis, ongoing monitoring, and coordinated care among healthcare professionals. Her presentation emphasized the need to combine medical rigour with person-centered care.

From a psychological perspective, Juana Ruiz-Escribano, a psychologist specializing in Myasthenia Gravis, highlighted the importance of continuous emotional support and the positive impact that projects like this have on the self-esteem and well-being of those affected. She underscored the therapeutic value of feeling heard, recognized, and part of a community, as well as the protective role of creating support networks.

The event also included a presentation by Cristina Adán, Head of the Medical Department at argenx in Spain and Portugal, who shared the company’s perspective on the project and reiterated its commitment to the community of people living with Myasthenia Gravis, active listening, and co-creating initiatives with associations as a way to move towards more humane and participatory care. “At argenx, helping patients is not limited to developing innovative drugs and making them available; we also want to participate in supporting them so that, as much as possible, the visibility of their condition and their quality of life improve in many other aspects. That is why we are so aligned with initiatives of this kind.”

The day concluded with an official closing ceremony and expressions of gratitude from AMES and the organizing team, followed by a group photograph symbolizing the unity of all those involved. At 1:00 PM, the art exhibition was officially inaugurated with a cocktail reception, transforming the space into a meeting point for dialogue, awareness-raising, and the exchange of experiences.

With “The Art of Emotions,” Valencia becomes the stage today for a project that demonstrates how art, technology, and personal testimony can be powerful tools for raising awareness of Myasthenia Gravis, generating social consciousness, and strengthening the community of people living with this disease.

Report by ‘24/7 Valencia’ team

Article copyright ‘24/7 Valencia’

FAMILY PHOTO CAPTION: Javier Pocovi, from the Valencia City Council, Adoración Llop, from the Valencian Government, Estíbaliz Barrio from Argenx, Ana Fabra, a Myasthenia patient, Raquel Pardo, president of AMES, Antonio Mota and Leisi Leigue, Myasthenia patients, Cristina Adán from Argenx and Pau Andrés from the Valencia Provincial Council.

More info: https://theterminalhub.com/

AMES: https://miastenia.ong/